Kidney Club was set up to help fellow kidney patients, by talking to each other. Originally this was via Zoom and a forum was also added to try out. I never really expected the forum to be used, but in the beginning there was a concern over security. So, Zoom was used and chats started on a Wednesday and Saturday.
As a patient myself (Stuart) I assumed, perhaps wrongly that I would receive more support pushing Kidney Club. I was shocked, in fact incredibly disappointed that there was no help, After all I was trying to help patients here with a new service. This was set up and built and paid for by myself on a very tight budget. So, in essence I become very disheartened as I was struggling to pay for everything.
So, I was forced to make some changes and cut costs and chats were moved over to Facebook Rooms. This is a free service via our Facebook Page which works well. I decided to pull the website also, as background costs and plug in charges in the back end were mounting up.
However, after giving it some thought, I decided to keep the website as I simply did not want to walk away from helping others. I am passionate about helping fellow patients, through the Chats and beyond. As well as the Chats, patients can also add their own information and story on the KIDNEY PATIENT PAGES