All About Kidney Club
Kidney Club has been designed by patients for patients, their carers and families. Built by Kidney Transplant patient Stuart Smith, whose aim is a very simple one. Connect as many patients with each other as possible, so in turn we all help each other as patients. Mental Health for example is something that many patients face through their time as a patient. One of the hardest things to accept is the new normal in terms of medication, changes to our body and much more. Whilst we might have great support from families, talking to a fellow patient can help in so many ways as they understand far better than most.
Using Technology To Bring Us All Closer
Technology is now available for us to connect like never before. You may have lots of questions about dialysis or waiting for a transplant. Patients can give you first-hand experience of this, giving an honest view of what you may face as a patient. There has never been a better time to support each other though this difficult time. You may wish to find out about medication that you need to take. You may be worried about weight gain should shielding happen again, hopefully we can some of the physios from Kidney Beam to come and have a chat about their great new exercise programme. Pull up a chair and come on in the Kidney Club and lets all help each other, because together we are stronger. Stay safe as this difficult time.
Learning from experience is vital in so many ways as a patient, learning from fellow patients really helps with this. You maybe worried about side affects of a medication you are taking. You maybe at one of the 5 stages of CKD and we know how overwhelming this can be. If you are experiencing this for the first time, it can also be very frustrating as those around you may struggle to understand. Kidney patients all go through it and you will find yourself opening up like never before, because you know they have been through it themselves. This is why Kidney Club has been set up, to keep it simple and to get the basics right. There is no need to overcomplicate after care, sometimes all we need to do is listen, then we can all help each other as patients.
Mental Health for example is something that many patients face through their time as a patient. One of the hardest things to accept is the new normal in terms of medication, changes to our body and much more
Kidney Club’s mission is to:
- Bring patients, carers & families together for support
- Talk to each other out in videos chats
- Focus on Mental Health
- Listen to patients
- Talk about dialysis & what it entails
- Talk about transplants & what to expect
- Carers & Family members perspective